Mirena IUD side effects??? Or am I crazy?
Did you know there is a discussion group for Mirena IUD ? 
Mirena IUD side effects??? Or am I crazy?
I guess its not like it really matters anymore. But I had my IUD removed this morning because of the God awful side effects I was having from it. PMS all the time, bad acne on my face and back, and worst of all I gained 20 lbs!! I only had it for one year, and I know the IUD was the culprit. None of it started till a few months after I got it. I was just wondering if there was anybody else who was or is going through the same thing as me....Hopefully now I can return to my normal self 
posted December 5, 2007 - 6:09pm
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I just got Implanon birthcontol Monday. (it is the one you place underneed the skin in your upper arm) My OB said she recommends this one above the IUD because it is not in an organ and she has had less complaints about it. I asked about PMS also, she said has had only one person complain to her about worse bleeding and other side effects. She told me that more than likely my period will be very short with Implanon, like most of the other women said. She also said that during the first few months I may have bleeding out of the blue but it should not be bad and after the first few months I shouldnt have any problems. You should talk to your OB about this, like I said, I just got it Monday but my cousin has it and she loves it. Hope I helped!
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PermalinkI am THRILLED to know I am not crazy, alone, or dreaming this stuff up! My husband and I have been on the verge of insanity dealing with my "change" since I had our daughter. First, let me tell you---I am a mother of two children (a boy who is 4 and a girl who is 22 months). After our son was born, I was on the NuvaRing, which I know is contraversial right now, but I loved it. I had no real side effects. I am a thin woman, but I gained 80- yes 80- pounds with my son. Afterwards, it literally "fell off" without me doing a lot of hard work or diet changes. Then, when my daughter was born last October, I had gained 50 pounds (which I thought was really good considering my 80 pound weight gain before). She was in the NICU for a month, so that helped with the weight loss- but when we stepped out of the NICU, I only had about 15 pounds to lose to get back to normal. Within the next month (I was on NO birth control) I had lost it all. I got my Mirena put in when she was two months old. About six months later, I experienced these weird dizzy-like flashes throughout my body. I don't know how to describe it- but I would be walking and have to stop, brace myself against the wall, and wait a few seconds until it passed. I didn't think anything of it, but after the "wave" of dizziness went through me, my heart would pound readily for a few minutes, and then I was back to normal. This occurred about 3-4 times daily for about three months. I went to my family doc who said that the Mirena would've caused problems "a long time before this" if it was indeed the culprit. (I had the IUD in for about 9 months at this point.) He blamed it on Migranes (which I had never experienced before in my life) and sent me home with the strongest Migrane medicine they had. It didn't work. Then, the REAL Migranes came about three months after that (12 months into the IUD)- and let me tell you what- I was dry heaving over the toilet and everything. Those lasted about three months---then one day, I was visiting my friend who had a scale. She had recently had a baby and was worried about her weight. I told her I had lost all of my baby weight shortly after Ella came out of the NICU. I stepped on the scale to show her and SURPRISE
.....I had gained every pound of that weight back! I was now the size I had been when I brought my baby home. I was tired, irritated, moody, and had daily headaches. Since March of this year, I decided I would dedicate myself to losing the weight by summer. I ran three miles a day, dieted (for the first time EVER), cut out all soda and carbs, etc. and guess what? I started fluctuating, which is where I am now. One day, I will wake up at 145, the next at 133, the next at 140, and so on. In two weeks of running and hard cardio workouts, I had GAINED 7 pounds! The next week, I loafed (probably as a result of my failing attempts to lose the weight) and lost 6. I have also tried cleansing, yoga, and meditation. It is erily familiar to everyone elses last-ditch attempts to figure things out. You truly do feel as though you're going nuts. This is a physical and emotional roller-coaster! My husband says I am more stressed out now than what I was when our daughter was fighting for her life in ICU. I am calling my Dr. first thing in the morning to set my apointment. I was hesitant to blame it on the birth control until I read all of the other testimonials. THANKS SO MUCH! I am not knocking the Mirena IUD, because I am sure it works well for some women. I, personally, like the NuvaRing (and NO I do not work for them- could I make this stuff up?!) but there are many women who have lawsuits out against the NuvaRing and HATE it. I think it is a matter of finding a birth control that your body accepts and adapts to. I chose the IUD because it is cheap and convenient- but it's not worth this. Thanks for sharing your stories---you may have saved my sanity and my marriage 
!!!
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PermalinkThe Killer IUD Mirena
My big mistake experimenting with the Killer IUD Mirena My first week using it a big pain. 07/22/08The second week my period arrived but just brown spotting and I began feeling kind of sad and depressed for no reason at all... the pain subsided, but my mood had changed dramatically. The third week during a weekend that my son had a little altercation (a fight) I began feeling nervous and jittery and and a feeling of deep emptiness in my chest. The following day the sadness was worse and every moment thereafter it intensified, I had this horrible feeling of anxiety and panic and all types of negative thought that came to my mind and just would not stop. I had this overwhelming feeling, everything made me nervous, sad, fearful and lonely. I felt completely unhappy and cried for no reason at all, spontaneously. I felt as if though my life had no meaning, no significance at all; completed depressed! My mother was very worried about me; I explained to her everything including that I started using IUD Mirena. She suggested we go to church. Every night, every instant I would pray and ask God to cure me, I did not understand why I was feeling this way; I was so scared because I thought I was losing my mind, because I did not have any problems at all to validate these feeling in my mind, in my heart. I could not sleep, therefore the the nights felt long in fact, I had no sleep at all! My mother continued to pray for me and asked God to provide her with a solution that would help me in the process. She awoke one morning and asked my sister to investigate on the computer the side effects of the IUD that I had used and to my surprise it outlined exactly was I was experiencing! Moments after I went to the see the doctor to have it removed they questioned me as to why I decided to have the IUD removed, when I explained my reasons and the emotional and physical reaction I had been experiencing, they mentioned that some people react differently due to different hormonal levels and that each case is individual. They had also examined my blood pressure, which was high and that has never happened in my life. The same day when they removed that "Killer" The IUD Mirena on 08/18/08, I instantly began to feel different; that night was the first night that I could sleep peacefully. Today, two days have passed I am still feeling a bit nervous, with every passing day, thank God, and the emotional and loving support of my family, I am feeling better and better. Are you are trying to use the Killer IUD Mirena? PLEASE, I urge you, DON'T!!!!!
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Permalinkalison21 wrote 4 min 13 sec ago
OK ladies, I'm not a blogger, never have before but I just had to share my story with everyone...I am the mother of 7 year old twin boys, I had the Mirena put in June of 2004. At first I loved it!! I cannot take the pill because of the hormones, every one I have ever been on, including Micronor (the mini pill) have made me fat and irritable to say the least. My doctor suggested Mirena saying the hormones would not go into my bloodstream and it has almost no side effects. I have never had a weight problem, I'm 5'7" and my normal weight is 125-135. I'm currently 160. I do not have a problem with food, I have very good, healthy eating habits and I exercise regularly. I have not been able to lose a pound no matter what I do, I've had 2 pelvic ultrasounds due to extreme bloating that will not go away. Here's a quick rundown of all my symptoms:
weight gain
inability to lose weight
feeling like there's something in my throat
bloated after eating
constant water retention
moody/short tempered
tired
not sleeping well, if at all
extreme muscle soreness in my upper back, I feel like I was in a car accident for about 2 years!
breakouts on my face, I actually had to buy zit cream, I haven't had breakouts since I was 13
memory loss
I've always been hypoglycemic, but I feel like it's getting worse every day
I went to a new doctor last week, she said progesterone=pre-gestation. My body is holding onto water and fat for the baby ( that isn't there). I was about to hire a personal trainer until I found this blog, thank you!! I'm not crazy! I NEVER would have attributed all these symptoms to the IUD. My doctor said GET IT OUT NOW so I'm going to keep updating this for all you ladies that think you might want it, or want to get it out. Mine is coming out Sept 2, 2008.
Also, I just found a website that said do not have sex less than 1 week before having it removed, as sperm can live for 5 days, so when it's removed and if you're ovulating you can become pregnant. Glad I saw that!
I will keep everyone posted as to my progress weekly
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PermalinkHi
I read your blog. Please keep me updated. I had mirena inserted in June. I have gained 10 pounds and my face looks like a giant zit. I feel pregnant. I am always spotting or leaking. My antidepressants no longer work. I go for weeks hating everybody and everything.
I want this mess out of me asap.
Nicole
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PermalinkI was seaching for birth control methods and decided not to choose Mirena after reading this thread. Anyway, concerning your symptoms, it sounds like you could possibly have fibromyalgia. I have it and was diagnosed by a rheumatologist 2 years ago. I recently found a new term called secondary fibromyalgia which results from a first illness or disease like hypoglycemia. However, I cannot find anyone willing to diagnose me with that. What type of specialist did you talk to in order to be diagnosed with hypoglycemia?
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Permalinkhello i read your blog about your experience with the iud i'm sorry that you had to deal with all that im sure it was hard . I have had it for about 4 months now and I've been dizzy have headaches i have vertigo though so I dont know which it is. I m curious about the weight gain . I have noticed that i'm feeling hungry all the time so i think im confused what should i do ? Part of me want to wait it out and see what happens and the other part of me is not
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PermalinkHi Alison21,
Did you also tell your doctor about the feeling like something is in your throat? Because that with memory loss, water retention, hypoglycemia, and weight gain are also symptoms of thyroid problems. I have hypothyroidism and I'm glad I got diagnosed because it will drive you crazy. Did having the Mirena IUD help matters? If not, you may want them to do a thyroid panel just to be safe. I'm not a doctor but I do know that thyroid disease often gets skipped over sometimes.
I hope you are feeling better.
Tracy
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PermalinkWell I'm glad I'm not alone!!!! I'm 38 and just had my fourt and final child. My pregnancies were all just horrible. I threw up morning noon and night, I lost 25 lbs., I had to have a perm. iv access becuase I was always so dehydrated etc. It was really awful. I am also very, very, anemic. I have been pretty much my whole life. Well after having Phoebe I wanted my tubes tied and a uterine ablation done. This would kill two birds with one stone. It would prevent pregancy and stop my periods and thus eliminate the anemia. My doctor however worked for a Catholic hospital and would have had to ask the board to approve the tubal ligation. I guess that was too much work for him so he convinced me that Merina was a much better option since it was as effective as a tubal and that my periods would just dissapear!!! So I let him put it in. That was 8 months ago. Since then I have had heavier periods than ever. This last one lasted 5 weeks and I had clots the size of golf balls. I went from 160 lbs. to 210 lbs. and can not get any to come off. My face is breaking out really badly, which it never dose. I could not understand what was going on. I'm so glad I found this site. It's been eye opening to say the least. Needless to say I have an appointement with my new doctor to have this thing removed so my life can get back to normal. Oh and on a side note, one would have thought that since he was pushing this so hard that he would have at least made sure my insurance company covered the proceedure. Well they did not. It cost me $700 out of pocket. That makes it just that much worse!!!
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Permalinkok I have been having issues with my IUD, and I have had it in for the 5 years. At first it was ok and then when I hit my 6th month I noticed that I was starting to have heart palpatations and being moody. Then I started gaining weight and having hard time sleeping. Then my hair started thing and this whole time since I got it in I swear I thought I was going thur my teenage years again and having zits!!!! I kept going to my doctors even landing in the ER with the palpatations cause I would end up getting and anxiety attack cause the palpatations scared the hell out of me. My doctors kept telling me oh its just your thyroid acting up again, well they tested it and 9 out of 10 times it was normal!!!! I think that I would know if it was my thyriod since I have dealt with that for 13 years I know my own body well!!!!! I kept telling my doctors that I think its the IUD, they kept saying no. I cant lose the weight either. I am at my heavest ever and they say it is because of my eating. I eat so good and heathly that my husband laughed when I told him that. I am so happy to read that there is other woman that have experience what I have over the last 5 years. Now I am tring to get my doctor to take out my IUD cause my 5 years was up at the end of march, well he dont want to take it out untill I am on the pill, which I cant start untill I have been on the Celexa for the anixety that I have from the stress and moodiness that I am dealing with which I think is from the IUD. I will never get another IUD again and I will never advise anyone else from getting one either again!!!!
Madena C.
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PermalinkHi I was wondering how you felt after you had yours removed? Did you expereince any side effects after the removal? I had mine removed today.
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PermalinkWell, I would love to know if things are getting better for you. I can't wait to have mine removed next week......never in my life would I have thought that that little iud could cause so many problems. I am so glad that I found this website and read all the comments from other moms who have had the iud. I have been a mess for two years now....I did not attribute it to the iud since I also went through a divorce and other major life changes, but I am a zit farm (and I am an esthetician, so imagine how I feel), I have gained at least 10 pounds, I am hormonal and angry with a very short temper.....good lord, I can't wait to see if I return to my normal happy self! I have been seeing a psychiatrist thinking that I am having a serious breakdown....I have even been somewhat suicidal (although I would never hurt myself-I could not do that to my boys and my family), but that is how bad it has been for me! I hope that you are starting to get back to your old self.....keep in touch and let me know, so that I can have some hope for my future!!!!
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Permalinkhey ladies i got my mirena iud about 5months ago i find nothing wrong with it. my eating habits have increased alot. other than that i have no head aches, no back aches nothing ... i have two children and my boy friend is extremelly fertile. please i urge all to at least give it a try
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PermalinkHello Ladies-
I wanted to get everyone's take and opinions on the Mirena IUD.
First off, first your health insurance cover it completely?
I have Aetna EPO, and mine did completely, except I had to order the Mirena on my own from their company, Theracom, then have it shipped to my OBGYN, then have it inserted, and then file the claim for reimbursement on my own. I did get the reimbursement check months later, but I'd say that was the most stressful issue related to the Mirena (so far, I've only had it in me for almost 1 year) Did your OBGYNs order it for you on your behalf?
The prcess of getting it and getting the money back was just so complicated, ugh. But I'm glad I got it. I'm 23 and a grad student, so I don't want to get pregnant anytime soon!
It seems like there aren't any negative side effects so far, but I'm still skeptical. I have an anxiety disorder and have had problems with nausea and dizziness for years, and headaches, but I don't think it's associated with the IUD...but could it be? It's just I remember having these problems before the IUD was inserted so I don't wanna blame it on the IUD.
Also, about thyroid problems that women have been
complaining about on here...I am pretty sure that I have a thyroid problem that is causing me a lot of fatigue....my best friend says she thinks I suffer from chronic fatigue syndrome and I think it could be related to my thyroid, could it be that there was always something up with my thyroid or could it be side effects of the IUD?
Anyone having chronic fatigue, anxiety, headaches, nausea and
think it's the IUD or totally unrelated seperate conditions?
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PermalinkHi, I just wanted to let you know that i have had very very sever headaches the kind that I couldn't even get up w/ out having to run to the bathroom to vomit. I was seen by my regular dr and the er several time to releave these headaches. I also experienced alot of nervousness, was very fatigue, and very very nauseated. Everyday I either had a debilitating headache or was very nauseated and absolutely miserable.
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PermalinkMy side effects came on so gradually that I did not attribute them to the IUD. How are you feeling these days? Hopefully, not depressed or feeling hopeless, bloated, pimply, fat...etc. I wish you the best of luck.....it really is an individual thing!
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Permalinkhi i read you post about the iud and i was wondering if you feel better not having it. i have mine and it is driving me nuts. im getting mine out tomorrow and im so excited! i have headaches all the time. i am so moody its not even funny! always light headed. and the list goes on. how long did it take you to see a change in your behavor?
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PermalinkI feel a LOT better since having it removed. It's been out 10 weeks today, it definately is taking some time. At first I was pretty bitchy with all my hormones going crazy,that has leveled out. I was spotting off and on, I got a real period on Oct 14, then another one on Nov 6. Since the 2nd one, I'm not as bloated, my back pain has improved by about 80%, and my hypoglycemia has improved about 80% as well. My symptoms would come and go, but now I'm starting to feel like i've turned the corner. And I took my measurements this morning, and all is looking smaller!! Just be patient, my Dr. said about a month for the hormones to be out, but I think it's more like 3 or more... I had mine in for over 4 years. Good luck!
Alison
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PermalinkMay 09 will be a year I have had my IUD in. I look like I'm 6 months pregnant. Never had problems with weight in my life. Even after having 2 children in one year. They are 10 1/2 months apart. The weight has been my biggest problem. I've not really had any other problems, but that is enough for me to want it out! Thanks for all your answers to my questions! Allison21....was it out patient to get it out? Did you have a lot of pain afterwards?
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Permalinki have had mireana for a year now and ive had nothing but problems with it i had my son 1 year ago when i got the iud i bled for three months i have been having a wieght problems tonight i might be 227 and tomrrow 234 my normal wieght before pregnancy was 180 and i was almost down to that before i got the iud the iud also causes me to get these severe pains down in my vaginal region and ever since i got the iud i have also had face and back acne its not bad but it still bgs me i never had an of thesse symptoms before i got the iud
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PermalinkHi, I had my mirena iud removed today after i had very heavy bleeding for 3 days and bleeding for over 2 weeks.
I am like you, i had my one inserted 2 months after having my son last year, i have experience bad pimples, weight gain, little moody, no interest to do anything.
The past 2 months i have experienced bad pain when having intercourse and bad bleeding afterwards.
I also have gained weight. I think lifestyle has something to do with it.
I dont know what i am going to do, That was my last option for controception after i cant take hormonal controception methods.
I have been warned not to fall pregnant becasue i was diagnosed with underactive thyroid, apprarently there is a risk of having a baby with birth/brain defects.
by sounds of it, maybe it might be good if you have your thyroid checked, apparently it is common after having a baby.
I am no doctor, i just know what i am going through, and your story sounds the same.
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PermalinkI'm epileptic and unable to take alot of birth control. Anyway after 5 children and several different types of birth control , my Dr. thought the mirena would be best. I finally had it put in around the first of April and immediately suffered several side effects. headaches ,not sleeping ,mood swings, bleeding more often and I also have pain during intercourse and heavy bleeding and cramping afterwards.Don,t let me forget to mention acne and worst of all I have to fight the urge to start smoking all over again after almost 5 years. I also find myself more short tempered and wanting to cry over everything. After reading about all the other women having problems and all the other side effects I could face I am gonna call my doc first thing in the morning. He told me I would suffer no hormonal side effects at all !!!!!!!!!
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PermalinkI have the Mirena IUD, and after my 4th month of having it I ended up in the emergency room thinking I was pregnant, because of all of the side effects I was having were the same as pregnancy. This is cause by the IUD brushing against the inside of your uterus, as explained by the ER doctor, and that I wasn't pregnant. He said that my body was thinking the IUD was a baby, plus to add the hormones that are in it fake your body out to think its preggers. I have the weird waves of dizziness as well, beacuse my blood pressure is going wack, combined with "heart throbbing" heart arithmea, which can be side effects of all birth controlls that involve hormones. I haven't schedualed to get mine taken out, but after hearing your story I am schedualing to have it removed. I have read story after story online about other women getting yeast and BV infections, as well as dizziness, blood pressure, heart palpitation problems heart arethmias. Did you know they recently took a bunch of nuva ring products out of the market temporarily to be reviewed for largely increased chances for stroke?
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PermalinkA note to all, I just got home from the ER. my IUD fell out while I was peeing. I used monostat yeast infection home treatments, and something happened where it fell out! I'm fine but it's scarry to have your IUD fall in the toilet!!
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PermalinkHi, how are you going now?
I have just joined this group, after i had my iud removed today, i had very heavy bleeding etc.
I am moody, controlable, weight will not budge and very dizy as well, i did have my throid checked and after 3 blood test to try and catch it, found out i was underactive and now on thyroxin tablets for 6 months, i have not exerienced much difference, hopefully i will see if what the merina in a months time or so.
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PermalinkI am so happy to finally find put that I am not the only one going through these horrible symptoms...I had the Mirena inserted in September of 2008 and have had nothing but trouble since. The problems started about 2 months after I had it inserted. I am constantly vomiting, bloated beyond belief and have headaches that are so debilitating that I can not function most of the time. I have found myself crying over anything, everything and nothing. I am constantly fighting with my husband to the point of him almost leaving me this past weekend until I started googling side effects for Mirena.
I am absolutely miserable!!!! In the months since the insertion I have had 1 period, that in itself would normally not bother me but I have gained about 20 to 25 pounds and can not get it off to save my life. Yesterday I spent the day in bed crying, puking and taking vicodin for the headaches that don't stop!
I am calling my doc this afternoon and having this thing removed. I was thinking about having another child this year so I think this has been my cue to have this removed and start trying.
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PermalinkMy list of symptoms since I had the Mirena IUD inserted include severe acne, anxiety, severe temper and -the worst and scariest- severe vertigo. I certainly can't say that there is proof of causation, but none of these occurred until after the IUD was inserted. I'm done. I'm getting a tubal ligation. Anyone got any nightmare stories with that one?
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PermalinkI'm so glad to hear that i'm not the only person struggling with Mirana. I have even worse mood swings now than i even did when i was pregnant, i can't lose weight and like you said i try my hardest and gain weight i slack off and i lose 5. I really don't know how much longer i can it. I thought for the longest time i was just going CRAZY, i guess i should have checked into side effects a little more but it was cheap and i didn't i have to think about it for another 5 years. I've had mine for a year in july and as soon as i can get into my OB i'm going to have it removed and go back on the pill. For the ones who haven't had any problems i envy you cause i wish i could say the same.
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PermalinkOh my gosh. I can't believe this. I have been so onery the last few months and didn't notice it, but my husband has. He just had a snip done and told me to get my IUD out. I refused...I don't have a period with it in and love it. But he said you are so onery. And I am, and i have gained so much weight. Not really sure how much weight because I'm scared to step on the scales...but I know it's at least 30 pounds. I am calling my doctor right now and scheduling to get it out...hearing everyone story on here is the same as what I am feeling but didn't realize it.
Thanks so much!!!!
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PermalinkI too, would like to thank you all. For nearly two years my husband has been telling me to get it out and I have dismissed him as being stupid. How could an IUD be making me psychotic, depressed and miserable? It wasn't until I was discussing with a friend my worsening skin problems when she mentioned it was probably hormone related. I put two and two together and did a quick search on the net to find this forum! It all makes perfect sense and I have an appointment tomorrow to get it out. I'm so excited. It seems obvious from reading a lot of personal experiences that everyone is unique and different things work differently on different people. If that makes sense. I will definitely post again in a month and let you all know how it's going.
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